Floating Faithfully is a story, written from my own personal experiences, of the daily struggles I’ve endured and battles I’ve overcome while living with Hydrocephalus. I was not born with Hydrocephalus, nor am I over 60-years old, as these are the “normal” two opposite spectrum's of the condition. I was diagnosed at the age of 29 and therefore an unlikely candidate and part of the minority of Adult Acquired Hydrocephalus sufferers. Having undergone 4 brain operations, 3 of which while I was 5½ months pregnant, this book details the survival of my baby and me at that time. Over time, my short-term memory has been affected and I literally see the strong, independent person I once was, slipping away. Faced with the possibility of going blind or possibly dying from it, it’s a daily fight to keep my head above water and keep up the façade that all is well…when it’s not. It’s a journey before, during and after brain surgery detailing the rollercoaster state of emotions.
Having exhausted any possible help in my home country going from one Neurospecialist to the next, we traveled overseas in the hope of finding better care. However, I have been left cleared of the disillusionment that help lies solely in the hands of Man as the sad reality hits home that Hydrocephalus care and knowledge is no better in our new country. I now turn to God, placing all my trust and faith in Him until he calls me home…This book serves as a source of knowledge and insight for both people who have this condition themselves as well as loved one’s who take care of them.
I hope to leave the reader educated on this condition, which affects millions around the world and hopefully shine a light on the Hydroid world, which is bound to become lonely. Providing useful resources, in the form of support groups to help make the journey that much more bearable and emphasizing the message that You need to be your body’s voice and advocate as other people’s ignorance is their bliss.
Hydrocephalus does not discriminate and affects millions across the world. Awareness is needed to kick-start required funding for research towards a Cure. You can help spread the Word.